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You are viewing the most recent 25 entries.
19th August 2009
8:18pm: August Newsletter
Read our August newsletter: http://cure4lupus.org/newsletters/newsletter809.htmTopics Include: Des Moines, IA Fundraiser, Vitamin D & Lupus, Donate to Our Walk Team, BenLysta, Featured Profile, Featured Lupus Website, Lupus Research News, What's Hot, Featured Product, New and Updated Pages Sign-up to get our newsletter by email: http://cure4lupus.org/phplist/?p=subscribe&id=6
31st July 2009
6:28pm: Support Lupus through The Pampered Chef
Now extended one week, you can support Lupus awareness and research by purchasing products from The Pampered Chef. Just visit our page to choose from hundreds of kitchen tools, cookware, bakeware, serving dishes and much more. A portion of each sale and all of our hosting gifts will be donated to Lupus awareness and research. Our page can be found here: Cure4Lupus.org Pampered Chef Page: http://www.pamperedchef.biz/camerongowdy?page=host-search-results&showId=2146135. As the premier direct seller of essential kitchen tools and part of the Berkshire Hathaway family of businesses, The Pampered Chef® and its sales force of Independent Pampered Chef® Consultants have been helping families prepare quick, delicious meals since 1980. They believe that multipurpose tools are the cornerstone of an efficient kitchen, and they're committed to developing timesaving tools, tips and recipes that enhance shared mealtime and suit busy lifestyles. Their products are designed to be used in more than one way, so kitchens are no longer cluttered with rarely used utensils.
24th July 2009
8:40pm: Big News in Lupus Research
This was a great week for Lupus research. Human Genome Sciences, Inc. and GlaxoSmithKline PLC announced that BENLYSTA™ (belimumab, formerly LymphoStat-B®) met the primary endpoint in a 52 week study. This is the first of two pivotal Phase 3 trials in patients with Systemic Lupus Erythematosus. This was a placebo-controlled study in which BENLYSTA™ showed significant improvement of disease activity when compared to placebo with adverse reaction rates comparable to placebo. The patients taking BENLYSTA™ were also able to reduce their steroid need.
BENLYSTA™ works by inhibiting BLyS. BLyS is a protein required for B-lymphocytes to mature into plasma B cells. Plasma B cells are white blood cells that produce antibodies and in Lupus they produce autoantibodies that attack the body's own tissues. People with Lupus often have elevated BLyS levels.
The results of the second, longer trial will be announced this fall. If this trial is also successful and BENLYSTA™ gets FDA approval it will be the first new treatment for Lupus in over 50 years and the very first drug developed specifically for Lupus since it's discovery over a century ago.
While a big step in the treatment of Lupus, this is only the beginning. This is not a cure for Lupus. Lupus is a complex, individualized disease that requires complex, individualized treatments. Much more research and more treatments are needed. BENLYSTA™'s success shows that there is hope and will hopefully help get some momentum going that will eventually lead to a cure!
27th October 2008
6:12pm: October Newsletter
Check out our October Newsletter at: http://cure4lupus.org/newsletters/newsletter1008.htm Features Include:
Get Out the Vote
Fundraiser for Lupus Groups
2008 Ornaments
REACH Amendments
Lupus Research News
Stem Cell Research News
New & Updated Pages
15th August 2008
4:03pm: Support me as I "walk"
Even though I am not physically able to walk in the second annual Iowa Walk for Lupus Now, I am still very passionate about the mission of the Lupus Foundation of America, so I am participating as a virtual walker and committee member.
This organization works to fund Lupus research, support Lupus patients, and raise Lupus awareness. This year’s walk will take place on September 13th at Gray's Lake in Des Moines, IA. I would like to invite you to help support us in fighting Lupus by sponsoring me with a donation. Click the link below to visit my page:
https://www.kintera.org/faf/donorReg/donorPledge.asp?ievent=272038&lis=0&kntae272038=FA91F2962504479BB04BBD0F4718C712&supId=185223504
Kendra Isola
webmaster@cure4lupus.org
23rd April 2008
1:19am: Lupus & Tattoos
One of the most common questions we receive is inquiring whether it is "ok" for people with Lupus to get a tattoo. The Lupus Foundation of America has this to say about the subject: "There are no specific problems that have been associated with tattoos in lupus patients. Keep in mind the small risk of infection with hepatitis B and C. Occasionally lupus patients have been known to have a reaction to the tattoo dye but this is very rare. Remember, if you are on immunosuppressive medication, this may increase the chances of infection and slow healing of the tattoo area. As with other procedures, it is best done when you are in remission or a welled controlled mild disease state. Consult with your physician prior to getting your tattoo." Also, if you are on blood thinners you may not be able to sit for long sessions. The longer someone is being tattooed, the more the skin is irritated and the more they bleed, pushing the pigment back out in spots. This does not apply to small tattoos (under 1 hour) or to black and gray tattoos. Kendra has thought about getting a tattoo for many years but was afraid of the pain and healing time. For her 30th birthday in January 2008 she decided to go for it. She wanted to get a tattoo that represented her passion and work for the Lupus Awareness Cause so she chose a purple butterfly carrying a purple ribbon. To add dimension a second color was added to the butterfly. A blueish teal was chosen in honor of Kendra's sister who has Scleroderma. Kendra having Lupus and Fibromyalgia was nervous about the pain, however found the entire process to be only slightly painful, perhaps comparable to a shallow sting. Kendra is also on immunosuppressives and was very diligent about aftercare. The tattoo healed up perfectly with no infection or complication within 1 week. Since getting the tattoo, we have gotten several compliments and even a few very flattering copies. Email us pictures of your Lupus tattoo to webmaster@cure4lupus.org. View Kendra's tattoo here: http://cure4lupus.org/information/lupus_&_tattoos.htm
10th November 2007
2:07am: November Newsletter
Read our latest newsletter here: November Newsletter Topics Include: Holiday Lupus Ornaments Media Campaign Update Our Political Efforts New and Upated Pages Products for a Cure Lupus Reasearch News Stem Cell Research News
10th August 2007
1:27am: Join our Team
We are participating in the first annual Iowa Walk for Lupus Now because our family & countless other families have been deeply affected by Lupus. Please support us in raising money to support the Lupus Foundation of America, Iowa Chapter. Their mission is to improve the diagnosis & treatment of Lupus, support those affected by the disease, increase awareness among health professionals & the public, & find the cause & a cure. We are asking all of our supporters to support us with a donation to sponsor us or you can even join our team and walk virtually! To make a donation to our team you can Visit our Team Page and click on Gaeneral Team Donation at the top. To Join our Team and Help us Raise Money for Lupus awareness, and research, Visit our Team Page and click on Join our Team at the top. Kendra Isola Cure4Lupus.org Webmaster Webmaster@Cure4Lupus.org
22nd May 2007
5:53pm: New this week...(ending 5/22)
This week's Media Campaign pick was Anderson Cooper 360
Glossary of Lupus Terms - -itis, arteritis, peritoneal cavity, tinnitus.
Lupus Stories - Jeani’s Story
Lupus Videos - ALR Faces of Lupus Video Added.
Celebrities & Lupus
Lupus Symptoms - Peripheral Neuropathy, Gastrointestinal Tract, Arteritis of the Large Intestine, Ascites, Chronic Diarrhea, Dysphagia, Hepatomegaly, Nausea & Vomiting, Autoimmune Inner Ear Disease (AIED), and Splenomegaly.
Lupus in the News
SLE Genetic Studies - NIEHS Study
Online Studies - National Databank for Rheumatic Diseases
Lupus Products - New: Lupus Awareness Car Decorations Page, Lupus Awareness Home Decorations Page, Purple Awareness Ribbon Products Page, 12 Lupus Awareness Journals.
Events Calendar - Long Island Walks w/ Us, June 10; Denver Walks w/ Us, Sept. 29; Dallas Walks w/ Us, Sept. 29; New York City Walks w/ Us, Oct. 13; Washington D.C. Walks w/ Us, Nov. 3; San Francisco Walks w/ Us, Nov. 3; Houston Walks w/ Us, Nov. 17.
Lupus Research News:
http://cure4lupus.org/news/07/news_lribiomarker.htm
Stem Cell Research News:
http://cure4lupus.org/news/sc07/scnews_051607.htm
http://cure4lupus.org/news/sc07/scnews_051607_2.htm
http://cure4lupus.org/news/sc07/scnews_051607_3.htm
http://cure4lupus.org/news/sc07/scnews_051707.htm
http://cure4lupus.org/news/sc07/scnews_051707_2.htm
http://cure4lupus.org/news/sc07/scnews_051807.htm
http://cure4lupus.org/news/sc07/scnews_051807_2.htm
http://cure4lupus.org/news/sc07/scnews_051907.htm
http://cure4lupus.org/news/sc07/scnews_051907_2.htm
http://cure4lupus.org/news/sc07/scnews_052107.htm
http://cure4lupus.org/news/sc07/scnews_052107_2.htm
16th May 2007
12:42am: New this week...(ending 5/14)
This week's Media Campaign pick was Dateline
Lupus Poetry & Humor - Now, & I am not this body.
Lupus Stories - Lisa’s Story, & updated Kendra’s Story (updated)
Lupus Products - New: Purple Ribbon Guardian Angel Pin, Purple Ribbon Survivor Bracelet, Purple Ribbon Heart Locket, Purple Ribbon Flag, Purple Ribbon Garden Flag, Purple Ribbon Watch. Price Reduced - Purple Antenna Topper, Purple Butterfly Italian Charm, Purple Ribbon Italian Charm, Purple Ribbon Charm Post Earrings, Purple Ribbon Charm Wire Earrings.
Stem Cell Research News:
http://cure4lupus.org/news/sc07/scnews_050807.htm
http://cure4lupus.org/news/sc07/scnews_050807_2.htm
http://cure4lupus.org/news/sc07/scnews_050807_3.htm
http://cure4lupus.org/news/sc07/scnews_050807_4.htm
http://cure4lupus.org/news/sc07/scnews_050807_5.htm
http://cure4lupus.org/news/sc07/scnews_050907.htm
http://cure4lupus.org/news/sc07/scnews_051007.htm
http://cure4lupus.org/news/sc07/scnews_051107.htm
http://cure4lupus.org/news/sc07/scnews_051207.htm
http://cure4lupus.org/news/sc07/scnews_051407.htm
9th May 2007
1:04am: New this week... (ending 5/8)
This week's Media Campaign pick was The Oprah Winfrey Show, also check out the update on: The Martha Stewart Show
Why go to Lupus Support Groups?
Lupus FAQ - Break the Cycle
Political Candidates - added listing of US House members co-sponsoring the Lupus REACH Amendments of 2007, also added contact info to all candidates, and Stem Cell Importance
Get Involved - Online Studies, Study for couples w/ Lupus.
Lupus Products - New: Fibromyalgia Sucks Bumper Sticker, Someone I Love has Fibromyalgia Bumper Sticker , What’s Your Excuse Fibromyalgia Bumper Sticker , Fibromyalgia Sucks Key Chain , Someone I Love has Fibromyalgia Key Chain , What’s Your Excuse Fibromyalgia Key Chain , Awareness Ribbon Punch, Awareness Ribbon Stamp, Awareness Ribbon Embellishment, Survivor Embellishment , Oval Survivor Embellishment.
Events Calendar - May 9th – LFA Live Chat – Social Security, June 6th – LFA Live Chat – Emotions of dealing w/ Lupus, October 13th – Des Moines, IA LFA Walk.
Lupus Research News:
http://cure4lupus.org/news/07/news_040407.htm
Stem Cell Research News:
http://cure4lupus.org/news/sc07/scnews_050307.htm
http://cure4lupus.org/news/sc07/scnews_050307_2.htm
http://cure4lupus.org/news/sc07/scnews_050307_3.htm
http://cure4lupus.org/news/sc07/scnews_050307_4.htm
http://cure4lupus.org/news/sc07/scnews_050507.htm
http://cure4lupus.org/news/sc07/scnews_050507_2.htm
http://cure4lupus.org/news/sc07/scnews_050607.htm
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