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You are viewing the most recent 25 entries.
27th October 2008
6:12pm: October Newsletter
Check out our October Newsletter at: http://cure4lupus.org/newsletters/newsletter1008.htm Features Include:
Get Out the Vote
Fundraiser for Lupus Groups
2008 Ornaments
REACH Amendments
Lupus Research News
Stem Cell Research News
New & Updated Pages
15th August 2008
4:03pm: Support me as I "walk"
Even though I am not physically able to walk in the second annual Iowa Walk for Lupus Now, I am still very passionate about the mission of the Lupus Foundation of America, so I am participating as a virtual walker and committee member.
This organization works to fund Lupus research, support Lupus patients, and raise Lupus awareness. This year’s walk will take place on September 13th at Gray's Lake in Des Moines, IA. I would like to invite you to help support us in fighting Lupus by sponsoring me with a donation. Click the link below to visit my page:
https://www.kintera.org/faf/donorReg/donorPledge.asp?ievent=272038&lis=0&kntae272038=FA91F2962504479BB04BBD0F4718C712&supId=185223504
Kendra Isola
webmaster@cure4lupus.org
23rd April 2008
1:19am: Lupus & Tattoos
One of the most common questions we receive is inquiring whether it is "ok" for people with Lupus to get a tattoo. The Lupus Foundation of America has this to say about the subject: "There are no specific problems that have been associated with tattoos in lupus patients. Keep in mind the small risk of infection with hepatitis B and C. Occasionally lupus patients have been known to have a reaction to the tattoo dye but this is very rare. Remember, if you are on immunosuppressive medication, this may increase the chances of infection and slow healing of the tattoo area. As with other procedures, it is best done when you are in remission or a welled controlled mild disease state. Consult with your physician prior to getting your tattoo." Also, if you are on blood thinners you may not be able to sit for long sessions. The longer someone is being tattooed, the more the skin is irritated and the more they bleed, pushing the pigment back out in spots. This does not apply to small tattoos (under 1 hour) or to black and gray tattoos. Kendra has thought about getting a tattoo for many years but was afraid of the pain and healing time. For her 30th birthday in January 2008 she decided to go for it. She wanted to get a tattoo that represented her passion and work for the Lupus Awareness Cause so she chose a purple butterfly carrying a purple ribbon. To add dimension a second color was added to the butterfly. A blueish teal was chosen in honor of Kendra's sister who has Scleroderma. Kendra having Lupus and Fibromyalgia was nervous about the pain, however found the entire process to be only slightly painful, perhaps comparable to a shallow sting. Kendra is also on immunosuppressives and was very diligent about aftercare. The tattoo healed up perfectly with no infection or complication within 1 week. Since getting the tattoo, we have gotten several compliments and even a few very flattering copies. Email us pictures of your Lupus tattoo to webmaster@cure4lupus.org. View Kendra's tattoo here: http://cure4lupus.org/information/lupus_&_tattoos.htm
10th November 2007
2:07am: November Newsletter
Read our latest newsletter here: November Newsletter Topics Include: Holiday Lupus Ornaments Media Campaign Update Our Political Efforts New and Upated Pages Products for a Cure Lupus Reasearch News Stem Cell Research News
10th August 2007
1:27am: Join our Team
We are participating in the first annual Iowa Walk for Lupus Now because our family & countless other families have been deeply affected by Lupus. Please support us in raising money to support the Lupus Foundation of America, Iowa Chapter. Their mission is to improve the diagnosis & treatment of Lupus, support those affected by the disease, increase awareness among health professionals & the public, & find the cause & a cure. We are asking all of our supporters to support us with a donation to sponsor us or you can even join our team and walk virtually! To make a donation to our team you can Visit our Team Page and click on Gaeneral Team Donation at the top. To Join our Team and Help us Raise Money for Lupus awareness, and research, Visit our Team Page and click on Join our Team at the top. Kendra Isola Cure4Lupus.org Webmaster Webmaster@Cure4Lupus.org
22nd May 2007
5:53pm: New this week...(ending 5/22)
This week's Media Campaign pick was Anderson Cooper 360
Glossary of Lupus Terms - -itis, arteritis, peritoneal cavity, tinnitus.
Lupus Stories - Jeani’s Story
Lupus Videos - ALR Faces of Lupus Video Added.
Celebrities & Lupus
Lupus Symptoms - Peripheral Neuropathy, Gastrointestinal Tract, Arteritis of the Large Intestine, Ascites, Chronic Diarrhea, Dysphagia, Hepatomegaly, Nausea & Vomiting, Autoimmune Inner Ear Disease (AIED), and Splenomegaly.
Lupus in the News
SLE Genetic Studies - NIEHS Study
Online Studies - National Databank for Rheumatic Diseases
Lupus Products - New: Lupus Awareness Car Decorations Page, Lupus Awareness Home Decorations Page, Purple Awareness Ribbon Products Page, 12 Lupus Awareness Journals.
Events Calendar - Long Island Walks w/ Us, June 10; Denver Walks w/ Us, Sept. 29; Dallas Walks w/ Us, Sept. 29; New York City Walks w/ Us, Oct. 13; Washington D.C. Walks w/ Us, Nov. 3; San Francisco Walks w/ Us, Nov. 3; Houston Walks w/ Us, Nov. 17.
Lupus Research News:
http://cure4lupus.org/news/07/news_lribiomarker.htm
Stem Cell Research News:
http://cure4lupus.org/news/sc07/scnews_051607.htm
http://cure4lupus.org/news/sc07/scnews_051607_2.htm
http://cure4lupus.org/news/sc07/scnews_051607_3.htm
http://cure4lupus.org/news/sc07/scnews_051707.htm
http://cure4lupus.org/news/sc07/scnews_051707_2.htm
http://cure4lupus.org/news/sc07/scnews_051807.htm
http://cure4lupus.org/news/sc07/scnews_051807_2.htm
http://cure4lupus.org/news/sc07/scnews_051907.htm
http://cure4lupus.org/news/sc07/scnews_051907_2.htm
http://cure4lupus.org/news/sc07/scnews_052107.htm
http://cure4lupus.org/news/sc07/scnews_052107_2.htm
16th May 2007
12:42am: New this week...(ending 5/14)
This week's Media Campaign pick was Dateline
Lupus Poetry & Humor - Now, & I am not this body.
Lupus Stories - Lisa’s Story, & updated Kendra’s Story (updated)
Lupus Products - New: Purple Ribbon Guardian Angel Pin, Purple Ribbon Survivor Bracelet, Purple Ribbon Heart Locket, Purple Ribbon Flag, Purple Ribbon Garden Flag, Purple Ribbon Watch. Price Reduced - Purple Antenna Topper, Purple Butterfly Italian Charm, Purple Ribbon Italian Charm, Purple Ribbon Charm Post Earrings, Purple Ribbon Charm Wire Earrings.
Stem Cell Research News:
http://cure4lupus.org/news/sc07/scnews_050807.htm
http://cure4lupus.org/news/sc07/scnews_050807_2.htm
http://cure4lupus.org/news/sc07/scnews_050807_3.htm
http://cure4lupus.org/news/sc07/scnews_050807_4.htm
http://cure4lupus.org/news/sc07/scnews_050807_5.htm
http://cure4lupus.org/news/sc07/scnews_050907.htm
http://cure4lupus.org/news/sc07/scnews_051007.htm
http://cure4lupus.org/news/sc07/scnews_051107.htm
http://cure4lupus.org/news/sc07/scnews_051207.htm
http://cure4lupus.org/news/sc07/scnews_051407.htm
9th May 2007
1:04am: New this week... (ending 5/8)
This week's Media Campaign pick was The Oprah Winfrey Show, also check out the update on: The Martha Stewart Show
Why go to Lupus Support Groups?
Lupus FAQ - Break the Cycle
Political Candidates - added listing of US House members co-sponsoring the Lupus REACH Amendments of 2007, also added contact info to all candidates, and Stem Cell Importance
Get Involved - Online Studies, Study for couples w/ Lupus.
Lupus Products - New: Fibromyalgia Sucks Bumper Sticker, Someone I Love has Fibromyalgia Bumper Sticker , What’s Your Excuse Fibromyalgia Bumper Sticker , Fibromyalgia Sucks Key Chain , Someone I Love has Fibromyalgia Key Chain , What’s Your Excuse Fibromyalgia Key Chain , Awareness Ribbon Punch, Awareness Ribbon Stamp, Awareness Ribbon Embellishment, Survivor Embellishment , Oval Survivor Embellishment.
Events Calendar - May 9th – LFA Live Chat – Social Security, June 6th – LFA Live Chat – Emotions of dealing w/ Lupus, October 13th – Des Moines, IA LFA Walk.
Lupus Research News:
http://cure4lupus.org/news/07/news_040407.htm
Stem Cell Research News:
http://cure4lupus.org/news/sc07/scnews_050307.htm
http://cure4lupus.org/news/sc07/scnews_050307_2.htm
http://cure4lupus.org/news/sc07/scnews_050307_3.htm
http://cure4lupus.org/news/sc07/scnews_050307_4.htm
http://cure4lupus.org/news/sc07/scnews_050507.htm
http://cure4lupus.org/news/sc07/scnews_050507_2.htm
http://cure4lupus.org/news/sc07/scnews_050607.htm
18th April 2007
12:07am: New this week... (ending 4/17)
This week's Media Campaign pick was Larry King Live
Lupus Symptoms - Lupus Headaches
Lupus Family and Friends - Things Not to Say
Lupus Products - New: Purple Ribbon Decal, Checkbook Cover & Credit Card Holder, Chemo Sucks Hat, Chemo Sucks Sweatshirt, Chemo Sucks T-Shirt, Chemo Sucks Button, Chemo Sucks Bag, Chemistry Sweatshirt, Chemistry T-Shirt, Chemistry Bag, andPurple Ribbon Jibbitz. Updated: Purple Ribbon Hat.
Lupus Poetry and Humor - Trapped, Tattoos
Events CalendarApril 27 - DLF Whistler Event
Stem Cell Research News:
http://cure4lupus.org/news/sc07/scnews_040407.htm
http://cure4lupus.org/news/sc07/scnews_040407_2.htm
http://cure4lupus.org/news/sc07/scnews_040407_3.htm
http://cure4lupus.org/news/sc07/scnews_040507.htm
http://cure4lupus.org/news/sc07/scnews_040507_2.htm
http://cure4lupus.org/news/sc07/scnews_040907.htm
http://cure4lupus.org/news/sc07/scnews_041007.htm
http://cure4lupus.org/news/sc07/scnews_041107.htm
http://cure4lupus.org/news/sc07/scnews_041107_2.htm
http://cure4lupus.org/news/sc07/scnews_041107_3.htm
http://cure4lupus.org/news/sc07/scnews_041107_4.htm
http://cure4lupus.org/news/sc07/scnews_041307.htm
http://cure4lupus.org/news/sc07/scnews_041307_2.htm
http://cure4lupus.org/news/sc07/scnews_041307_3.htm
http://cure4lupus.org/news/sc07/scnews_041307_4.htm
28th March 2007
5:17am: New this week... (ending 3/27)
This week's media campaign pick was: The Ellen Show Discoid Lupus Erythematosus Subacute Cutaneous Lupus Erythematosus Drug Induced Lupus Lupus Symptoms - Lupus Panniculitis (Lupus Profundus), Subacute Cutaneous Lesions w/ pictures, Discoid Lesion pictures Lupus Products - Changed Shipping Policy and Charges. Reduced prices of all Buttons and Ribbon Sticker. New Products: Photo Frame, Antenna Topper, Tall Ribbon Sticker, Ribbon Purse, Faith, Hope, Courage, Strength Wristband, Hope Wristband, and Ribbon Socks. Glossary of Lupus Terms - Lesion Lupus Research News http://cure4lupus.org/news/07/news_032107.htm Stem Cell Research http://cure4lupus.org/news/sc07/scnews_032107.htm http://cure4lupus.org/news/sc07/scnews_032207.htm http://cure4lupus.org/news/sc07/scnews_032207_2.htm http://cure4lupus.org/news/sc07/scnews_032207_3.htm http://cure4lupus.org/news/sc07/scnews_032207_4.htm http://cure4lupus.org/news/sc07/scnews_032407.htm http://cure4lupus.org/news/sc07/scnews_032507.htm http://cure4lupus.org/news/sc07/scnews_032607.htm
11th March 2007
10:56pm: Lupus Awareness Media Campaign
We are announcing a Lupus Awareness Media Campaign. We are starting a campaign to try to get some media attention for Lupus Awareness. Every week we will be picking a Television show, newspaper, magazine or radio show asking them to do stories/segments on Lupus. We will post our letters and the contact information for the media outlet we have chosen for that week. We ask all of you to write to these outlets as well. The more letters they get, the more serious they will take us and the more likely they are to do the stories. Many of us have written these emails before, but if we coordinate so that they get hundreds of letters in the same week, maybe they will pay attention! You can write one letter and save it on your computer and send the same one to each media outlet. Or, you can do what we will be doing and have a basic letter that you can customize to each show, etc. New picks will be posted every Friday. To see the picks or have them emailed to you weekly, visit http://cure4lupus.org/media_campaign.htm.
6th March 2007
7:55pm: Please email Dr. Phil
I encourage all of you to email Dr. Phil and suggest to him that he do some research on Lupus. Today on his show about Anna Nicole he stated that Lupus was not life threatening. I was so angry I could not stand it. We get way to little publicity and for him to be putting out false information is just irresponsible! Here is the place to go: http://www.drphil.com/plugger/respond/?plugID=9164
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