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Seth (madscientist) wrote,
@ 2007-10-06 23:42:00
Previous Entry  Add to memories!  Add to Topic Directory  Tell a Friend!  Next Entry

    Current mood: contemplative

    Time to purge.


    To a cancer survivor, the word cure is all but nonexistent. It’s nothing more than a cleverly disguised ruse, a sham devised to make people feel more secure. It’s a security blanket: worn thin from use, riddled with holes, and with no hopes of forcing out the invading cold. It’s a trump to the ego, a relentless boasting of our vast intellect and superiority. It’s all a scam. Even the best intentions don’t make it true.

    Curing implies a restoration of what once was. As if it was so simple. A little slice and dice, add in some nuke juice for good measure, and you’re as good as new. Cancer can’t be cured as easily as a broken bone is healed. Something breaks, deep inside, that has no hope of ever mending. There isn’t a band aid big enough. Something changes. Physically, emotionally, whatever it is, things will never be the same. Never.

    Far beyond the date of my supposed cure, even further past the date of my remission, and cancer still has lingering effects on me. It took me a long time to accept that these are permanent effects. It’s just like skin, if you cut deeply enough, it will never return to what it once was. I’m okay with that. And I’m far beyond needing others to validate my feelings, to tell me that it’s okay to not be over this. Quite frankly, I don’t give a fuck. I’m not overly dramatic or one for theatrics. This isn’t a cry for attention. There isn’t a single emotion written in this journal that I’ve been able to express to someone’s face. I’ve never been good with oral communication, at least not when it matters. Shameless flattery I can do. Beyond that, and I’m at a loss. The words never come out right, at least not the way in which my perfectionist streak demands.

    I get so frustrated at times at the slow progress of my life. I want to know everything, and I want to know it now. I want to make a difference. I desperately want to help people. I feel like a walking, talking cliché sometimes, but that doesn’t change how I feel. All of those wants gather and bear down on my chest, pushing the air out of my lungs, making me feel helpless and small underneath the weight. I put so much unneeded pressure on myself. I’ve never wanted to just do well. It could never be that simple. No, I want to be the best. Not even second best would do.

    I am young, idealistic, and incredibly naïve. I’ll be the first to admit to all of those things. I got into a fairly heated debate with a member of my dissertation committee last week, with him telling me that the endpoint of my clinical trail wasn’t feasible. The endpoint is of drastic change to federally mandated guidelines. It would cost too much to change, he told me. And people knowingly increase their risk of cancer by smoking and drinking on a daily basis.

    People like him infuriate me. Just because something is hard and seemingly impossible doesn’t mean it isn’t worth doing. The simple path may lead to more publication, grant money, and friends. But, at the end of the day, at least I’ll be able to live with myself. I may have made enemies, but my conscience will be clean. I refuse to simply turn my head the other way and pretend the problem doesn’t exist. No thanks. And I think he greatly underestimates just how many people have been impacted, in some form or another, by breast cancer. It’s hard to find someone without an aunt, a sister, a mother, a grandmother, a friend… who has been diagnosed with breast cancer. Feasible or not, I’ll still try.

    Cancer has shaped who I am. There are a thousand and one bad attributes to my personality and health that I can blame, at least partially, on cancer. Because of cancer, I have this need to control everything around me. Big or small, it doesn’t matter. From the scheduling of my day to the direction of my life, I organize, plan, and attempt to control everything. Because of cancer I trust few people, and I never trust someone without a struggle. Because of cancer, I’ve got a multitude of personality defects and quirks that may very well make me too much of an effort for any woman to put up with for any length of time. Because of cancer, I’ve got a multitude of scars, a heart that’s most likely to fail, and lungs that will never work quite right. Because of cancer, I learned a lot of life’s lessons at an early age. Because of cancer, I sometimes feel completely alone. Because of cancer, I have the emotional baggage of a senior citizen.

    Still, because of cancer, I’m reminded on a regular basis how grateful I am to be alive. Because of cancer, I found out early that your family is probably the only constant in your life that you’ll ever have. I found out who my true friends were. I learned that little in life should be taken seriously and that you can never laugh too much.

    Life may be unfair. Justice may be nothing more than another security blanket term. But that doesn’t mean that you can’t make the most of the hand that you’re dealt.



(Post a new comment)


yodelayhayhoo
2007-10-06 23:59 (link)
I have AMAZING timing, or a sixth sense. The last two entries you've posted public (was this an accident?), I've felt the sudden urge to check your journal for no apparent reason, and it's been within 20 minutes of your post. Six minutes, this time. Crazy.

I love you. You are incredible. I understand a lot of this. I have a lot more to say about your entry, but I'm not sure you want me to, so... I'll just leave it at that.

(Reply to this) (Thread)


madscientist
2007-10-07 09:46 (link)
It was an accident, but I'll leave it an accident. I also meant to cut off comments, but we see how well that turned out as well. And since when have i ever not wanted to hear what you had to say ;)

(Reply to this) (Parent) (Thread)


empyreal
2007-10-07 01:56 (link)
I can't help but wonder if he would feel the same way if he had 'walked a mile in your shoes', to coin a phrase.

What I mean is, if he had cancer, or knew someone who did, would he not want to explore every option, regardless if it seemed impossible, if there was a glimmer of hope? To what ends would he go to save himself or a loved one?

That is the difference between you two, and I am positive it isn't the only one, but the main one I'm seeing within this post... and it will be that difference that has you standing far and above this guy. That very difference may just save someone's life.


"Because of cancer"-- you are who you are. I dunno about you, but I like you just the way you are.

I don't know anyone who would willingly choose the path that you had to take, but many walk it. Some make it through, some give up before they even head down the path. You're not one of the latter. You're a fighter, that much is obvious.

Keep fighting, Seth. You know as well as I do.. you'll make a difference.

(Reply to this) (Thread)


madscientist
2007-10-07 09:50 (link)
He's a different kind of guy. I do think he has been hit pretty close by cancer, but I also think he's incredibly jaded by his time in academics. He spent a lot of our meeting telling me how studies like mine don't get published because they don't work. And then he went on to rattle off a half dozen of his attempts to make something vaguely similar work. I understand this is his experience speaking, but I also understand that nothing is guaranteed to work. It might not work, but it MIGHT work. That's all the hope I need.

As for who I am, I am happy with that person. Honestly, I've felt more comfortable in my own skin the past year or so than I ever have. A lot of that has to do with accepting who I am and being happy with that person, flaws included. I'm not sure where I'd be without cancer. Sometimes it sucks, but a lot of the time it's been a good thing. I think it's all a matter of perception.

(Reply to this) (Parent) (Thread)

hijacking the thread
yodelayhayhoo
2007-10-10 02:37 (link)
It might not work, but it MIGHT work. That's all the hope I need.

This is just one reason I love you. The world needs more people like that... Seriously.

I'm not sure where I'd be without cancer. Sometimes it sucks, but a lot of the time it's been a good thing. I think it's all a matter of perception.

I agree. And it's taken me years to adjust to my own cancer enough to finally feel like I, for the most part, see it as a positive experience/opportunity rather than a burden or a curse. I've learned a lot from you, mister. Thanks. ♥

(Reply to this) (Parent) (Thread)


absolutelyjessa
2007-10-07 13:47 (link)
Oooh, I have some things to say but I just don't have the time to write them down now (because you know me, if I'm going to comment I may as well write a novel). I'll email you later or something, 'cause I want to commisserate about people who shoot you down because of your idealism. It happened to me, big-time, last week. I don't think I told you about that..........but anyway, more later.

(Reply to this) (Thread)


madscientist
2007-10-09 21:57 (link)
commisserate away, my dear ;)

(Reply to this) (Parent) (Thread)


absolutelyjessa
2007-10-09 23:18 (link)
I will, I will. My time has been a teeny bit crunched this week, but it's on my to-do list ;)

(Reply to this) (Parent) (Thread)


madscientist
2007-10-12 08:00 (link)
Haha. I'm on your to-do list. Score!

(Reply to this) (Parent) (Thread)


xlostromanticsx
2007-10-07 18:01 (link)
Wow. I can really only say wow. Something about this entry almost made me cry, I don't know if it's because of one of those kinds of moods or simply because you are amazing. maybe it's both. you know that you are doing amazing work and you don't need us or anyone else to do that, but know that there are a lot of people that are proud of you and are looking forward to seeing this fantastic end result.

(Reply to this) (Thread)


madscientist
2007-10-09 21:57 (link)
Thanks, sugar ;) And you as well. How goes nursing school, BTW?

(Reply to this) (Parent) (Thread)


xlostromanticsx
2007-10-10 15:17 (link)
Anytime :)
School is actually going really really well for a change :)
Long update coming soon, I promise

(Reply to this) (Parent) (Thread)


boredgirl260
2007-10-11 21:11 (link)
Wow. I don't really have anything to add, but great entry.

(Reply to this) (Thread)


madscientist
2007-10-12 08:00 (link)
Thanks, kiddo

(Reply to this) (Parent) (Thread)


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