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Derek Update Mingled With Christmas
I skipped Christmas Eve Dinner.
Let me start in the beginning. I spent about two days with Derek and instead of coming home yesterday as I had planned, I came home at 6 a.m. this morning. It was hard to leave him, though at least he was asleep most of the time.
Getting home late meant having less time for baking and cleaning, and if you consider that I had an over-3-hour-long nap in the middle of the day you, dear reader, can imagine in what shape I left the house when I headed back to Vienna to be with Derek for a while. That wouldn't have really bothered me if my parents were not coming! Yes, the same parents who were so horrible last year. And I was supposed to meet them at Conan's and then they were going to spend the night at ours, in our bedroom to be exact. Having said that I have to say that when I left our bedrrom was a mess.
I stopped by at Conan's house to get the gifts for Derek and then I went to see him. Once again his will is keeping him going. While he is still very week and suffers from terrible headaches, he has a desire to communicate. Speech wears him out, he has a very hard time with it, so he has to use the computer for communications. He can manage a few minutes at once, which is better than what we expected. But no, he is not ready to carry on a long converstaion or to remain focused for over 30 seconds at this point. He is about where he was 4 days ago when his symptoms suddenly worsened. He is fighting to be back to normal soon, but it is not an easy ride.
Derek asked me to light a candle in memory of Justin, who passed away a year ago today.
This is probably one of the hardest Christmases for me. I will smile, but my heart quietly aches.
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